Dana’s Story

The following was written by my dear cousin and life-long friend Dana. She shared it yesterday on Facebook and I asked her if she wouldn’t mind me sharing it here at Clothed with Joy. She agreed.

Dana embodies being clothed with joy more than anyone I have ever met.

When you read this brief summary of her story you will catch a glimpse of what I mean. I came into Dana’s life three years after she was born, but from my early teen years we were always together (except for the brief period of time when she stole the love of my life at my thirteenth birthday party – but whatever. I’m over it. 😉 )  I can tell you from the point of view of a first hand account that she has sugarcoated much of the agony (yes agony – I was there, I saw it on her face) she experienced during her first 21 years.

Here is her story:

This morning, as I was praying with my kids on the way to school, I was convicted by the shallowness of my own prayer even before the final “Amen.” Here’s a recap. Help my kids to be nice. Help them to pass their tests. Help my husband and kids to be healthy. Help us all to be happy. I used fancier words, but the message was clear. God, I want everything to be neat and tidy; no struggles, please. Seriously?

42 years ago, I was diagnosed with rhabdomyosarcoma, a rare form of cancer that usually hits kids under the age of 5. Devastating news for my parents at the time? Absolutely. Over the next 17 years, my mom and I spent countless hours together in doctors offices and hospitals. The end result? A genuine, honest, real relationship between me and my mom right smack through my teenage years and into adulthood. What mom doesn’t want that?

At age 14, I was diagnosed with severe scoliosis and was the proud owner of big ugly back brace. Some of the perks? I got to shop in the boys department at JC Penneys and wear hideous baggy pants with elastic waists. Despite the brace, the curve continued to get worse and I had back surgery at Shriners Hospital in Philadelphia. The hospital was full of girls with scoliosis and boys with broken necks. It would make for a cool love story if that was where Dennis and I met, but it wasn’t. The whole experience did, however, give me a real life look into the lives of these other kids. They were kids just like me. Many of them confined to wheelchairs, but their hopes and dreams were often just the same as mine.

That big clunky back brace may have made guys run in the opposite direction, but it little by little prepared my heart to one day run into Dennis’ arms, paralyzed or not. The cancer may have taken away my ability to get pregnant, but it carved a space in my heart for adoption and two precious children the Lord knew would one day call me “Mom.” So here’s to the end of praying for a struggle-free life and a renewed desire to pray for the Lord to use whatever struggles He allows to touch our family, for our good and His glory!

I love you my beautiful friend. I'm so thankful for the example you are.

I love you my beautiful friend. I’m so thankful for the example you are.

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